Autistic patients need healthcare professionals to know that their discomfort can feel worse than pain, and that pain scales do not work for us due to our interoception differences.
Your articles are always so fascinating and full of knowledge. Have you written a book about this stuff? I feel like it'd be a bestseller. For real. I'm not sure what kind of resources there are out there in this realm, but just a thought. Thank you for taking the time to share all this.
Thanks, that’s so lovely of you to say! I have it in mind to write a book but it’s a literal nonstarter of a project. It’s so hard writing this trauma all down whilst living and reliving it, as I’m sure all of us are finding 😭
Wow! , great piece of writing. My brain fog is thick today but I couldn't stop reading. I feel so much of this! Not knowing what your body is feeling, or how to describe it. Being medically gaslit so so much. Not having pain believed so much it is dangerous to life. Trying to just survive perimenopause! I really feel your experience x
Thank you for this. I did not go through as intense of a hell as you describe here, but it was definitely hell. At the time, I did not know I was Autistic - I was diagnosed post-menopause. Reading about your experience has helped me make sense of my perimenopause and menopause experience, and I am reframing my recollection with this newer understanding of how much menopause impacted how I experience being Autistic. Thank you for so fearlessly and eloquently sharing your story. Most notably, I appreciate your exploration of how differently we experience and interpret pain.
I’m delighted to hear your experience of the autistic menopausal transition wasn’t as dreadful as mine has been so far! It’s also reassuring to be reminded that, at some point, it will improve again although who knows to what extent on my part. It’s hard piecing this all together, we are lucky knowing that we aren’t alone 😊
Your articles are always so fascinating and full of knowledge. Have you written a book about this stuff? I feel like it'd be a bestseller. For real. I'm not sure what kind of resources there are out there in this realm, but just a thought. Thank you for taking the time to share all this.
Thanks, that’s so lovely of you to say! I have it in mind to write a book but it’s a literal nonstarter of a project. It’s so hard writing this trauma all down whilst living and reliving it, as I’m sure all of us are finding 😭
Wow! , great piece of writing. My brain fog is thick today but I couldn't stop reading. I feel so much of this! Not knowing what your body is feeling, or how to describe it. Being medically gaslit so so much. Not having pain believed so much it is dangerous to life. Trying to just survive perimenopause! I really feel your experience x
Sorry, I only just spotted your comment now. I’m glad it’s validating your experience, but I’m sorry you’re going through all this too x
Thank you for this. I did not go through as intense of a hell as you describe here, but it was definitely hell. At the time, I did not know I was Autistic - I was diagnosed post-menopause. Reading about your experience has helped me make sense of my perimenopause and menopause experience, and I am reframing my recollection with this newer understanding of how much menopause impacted how I experience being Autistic. Thank you for so fearlessly and eloquently sharing your story. Most notably, I appreciate your exploration of how differently we experience and interpret pain.
I’m delighted to hear your experience of the autistic menopausal transition wasn’t as dreadful as mine has been so far! It’s also reassuring to be reminded that, at some point, it will improve again although who knows to what extent on my part. It’s hard piecing this all together, we are lucky knowing that we aren’t alone 😊