Hello everyone!
Have you ever wondered why you feel so low, and whether you will ever feel better again? I have - in fact I still do! Wah!
I want to share news of my current auti peri functioning regression with you, but am too far beyond capacity to type, edit and publish a long-form written post.
So I am being brave today and sharing my first video post here on Substack!
Please let me know in the comments if you like this format.
Here’s a quick run down of what I discuss/monologue…
Last weekend I ran out of the oestrogen patches that I absorb best and had to use a different brand. I regressed rapidly and significantly.
Symptoms include: painful digestive issues, working memory lapses, difficulty in word finding, very low mood, The Rage, irritability, extra dry eyes (only two, and they are always dry), forgetting to take my meds, menstrual cramps and lower back pain.
But wait, there’s more!
Feverish hot flushes and extreme body temperature dysregulation.
Disordered eating habits and inability to respond to hunger cues.
Simultaneous fatigue and insomnia.
What a ride! 🎢
Do you experience regressions like these?
What are your symptoms?
I would love advice on how you cope with them.
Side note: I was overzealous on the accessibility functions in the video, not to mention unfamiliar with Substack’s AI-generated closed captions. Basically, I edited (barely) the video in the Capcut app, added subtitles in directly, then uploaded it here. So the closed captions can’t be switched off (sorry).
But the neurodivergent and disabled people among us all know that’s for the best - accessibility features are a basic communication right for all. Accessibility should be the rule, not the exception.
Apologies about all the verbal ums and ahs. I left them all in the edit because it’s authentic autistic communication. That’s why I am gazing up and across rather than looking directly into the camera. I have to look up to think, or mouth words don’t come. Plus, if I had stared into the camera lens, I think it would be pretty intense for all of us. Ha ha!
I have had to push hard on the self-advocacy this week, and here is a recent post I published on the topic:
Thanks for reading/watching! Wishing you a non-regressive weekend!
Sam 💕
🔻Regression in progress - how low can you go? 📉